# 616208

AMYOTROPHIC LATERAL SCLEROSIS 22 WITH OR WITHOUT FRONTOTEMPORAL DEMENTIA; ALS22


Phenotype-Gene Relationships

Location Phenotype Phenotype
MIM number
Inheritance Phenotype
mapping key
Gene/Locus Gene/Locus
MIM number
2q35 Amyotrophic lateral sclerosis 22 with or without frontotemoral dementia 616208 AD 3 TUBA4A 191110
Clinical Synopsis
   
Phenotypic Series

INHERITANCE
- Autosomal dominant
NEUROLOGIC
Central Nervous System
- Amyotrophic lateral sclerosis with spinal site of onset
- Upper motor neuron involvement
- Lower motor neuron involvement
- Frontotemporal dementia (in some patients)
MISCELLANEOUS
- Limited clinical information provided
MOLECULAR BASIS
- Caused by mutation in the alpha-4A tubulin gene (TUBA4A, 191110.0001)
Amyotrophic lateral sclerosis - PS105400 - 32 Entries
Location Phenotype Inheritance Phenotype
mapping key
Phenotype
MIM number
Gene/Locus Gene/Locus
MIM number
1p36.22 Frontotemporal lobar degeneration, TARDBP-related AD 3 612069 TARDBP 605078
1p36.22 Amyotrophic lateral sclerosis 10, with or without FTD AD 3 612069 TARDBP 605078
2p13.1 {Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 DCTN1 601143
2q33.1 Amyotrophic lateral sclerosis 2, juvenile AR 3 205100 ALS2 606352
2q34 Amyotrophic lateral sclerosis 19 AD 3 615515 ERBB4 600543
2q35 Amyotrophic lateral sclerosis 22 with or without frontotemoral dementia AD 3 616208 TUBA4A 191110
3p11.2 Amyotrophic lateral sclerosis 17 AD 3 614696 CHMP2B 609512
5q31.2 Amyotrophic lateral sclerosis 21 AD 3 606070 MATR3 164015
5q35.3 Frontotemporal dementia and/or amyotrophic lateral sclerosis 3 AD 3 616437 SQSTM1 601530
6q21 Amyotrophic lateral sclerosis 11 AD 3 612577 FIG4 609390
9p21.2 Frontotemporal dementia and/or amyotrophic lateral sclerosis 1 AD 3 105550 C9orf72 614260
9p13.3 ?Amyotrophic lateral sclerosis 16, juvenile AR 3 614373 SIGMAR1 601978
9p13.3 Amyotrophic lateral sclerosis 14, with or without frontotemporal dementia 3 613954 VCP 601023
9q34.13 Amyotrophic lateral sclerosis 4, juvenile AD 3 602433 SETX 608465
10p13 Amyotrophic lateral sclerosis 12 3 613435 OPTN 602432
12q13.12 {Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 PRPH 170710
12q13.13 Amyotrophic lateral sclerosis 20 AD 3 615426 HNRNPA1 164017
12q14.2 Frontotemporal dementia and/or amyotrophic lateral sclerosis 4 AD 3 616439 TBK1 604834
12q24.12 Spinocerebellar ataxia 2 AD 3 183090 ATXN2 601517
12q24.12 {Amyotrophic lateral sclerosis, susceptibility to, 13} AD 3 183090 ATXN2 601517
14q11.2 Amyotrophic lateral sclerosis 9 3 611895 ANG 105850
15q21.1 Amyotrophic lateral sclerosis 5, juvenile AR 3 602099 SPG11 610844
16p11.2 Amyotrophic lateral sclerosis 6, with or without frontotemporal dementia 3 608030 FUS 137070
17p13.2 Amyotrophic lateral sclerosis 18 3 614808 PFN1 176610
18q21 Amyotrophic lateral sclerosis 3 AD 2 606640 ALS3 606640
20p13 Amyotrophic lateral sclerosis 7 2 608031 ALS7 608031
20q13.32 Amyotrophic lateral sclerosis 8 AD 3 608627 VAPB 605704
21q22.11 Amyotrophic lateral sclerosis 1 AR, AD 3 105400 SOD1 147450
22q11.23 Frontotemporal dementia and/or amyotrophic lateral sclerosis 2 AD 3 615911 CHCHD10 615903
22q12.2 ?{Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 NEFH 162230
Xp11.21 Amyotrophic lateral sclerosis 15, with or without frontotemporal dementia XLD 3 300857 UBQLN2 300264
Not Mapped Amyotrophic lateral sclerosis, juvenile, with dementia 205200 ALSDC 205200

TEXT

A number sign (#) is used with this entry because of evidence that amyotrophic lateral sclerosis-22 with or without frontotemporal dementia (ALS22) is caused by heterozygous mutation in the TUBA4A gene (191110) on chromosome 2q35.

For a phenotypic description and a discussion of genetic heterogeneity of amyotrophic lateral sclerosis (ALS), see ALS1 (105400).


Clinical Features

In their study of familial ALS caused by mutations in the TUBA4A gene, Smith et al. (2014) found that all patients carrying TUBA4A mutations had spinal-onset classical ALS with upper and lower motor neuron signs. Two cases also developed a cognitive decline of frontal type, consistent with a diagnosis of frontotemporal dementia (FTD; 600274), and another had a first-degree relative with FTD.


Molecular Genetics

Smith et al. (2014) performed an exomewide rare variant burden analysis in 363 index cases with familial ALS (FALS) from 6 countries. In this discovery cohort, Smith et al. (2014) identified 5 nonsynonymous TUBA4A changes, all localized in exon 4 and confirmed by Sanger sequencing. None of the mutations was observed in 4,300 controls from the Exome Variant Server database, and all occurred at highly conserved positions. The mutations included 2 missense mutations in the same residue (R320C, 191110.0001 and R320H, 191110.0002) a nonsense mutation (W407X; 191110.0003) removing the last 41 amino acids, and 2 additional missense mutations (R215C, 191110.0004 and A383T, 191110.0005). Because no relatives of the affected patients were available to test segregation, Smith et al. (2014) sequenced an independent replication cohort comprising 272 index FALS cases and 5,510 internal European American controls for rare damaging exon 4 variants. In the replication cohort, 2 cases (0.65%) were identified versus 2 controls (0.04%, p = 1.5 x 10(-2)). A combined analysis of the discovery and replication cohorts resulted in a statistically significant overabundance of rare variants after multiple test correction (odds ratio = 36, 95% confidence interval: 10-210, corrected p = 4.2 x 10(-3)).


REFERENCES

  1. Smith, B. N., Ticozzi, N., Fallini, C., Gkazi, A. S., Topp, S., Kenna, K. P., Scotter, E. L., Kost, J., Keagle, P., Miller, J. W., Calini, D., Vance, C., and 54 others. Exome-wide rare variant analysis identifies TUBA4A mutations associated with familial ALS. Neuron 84: 324-331, 2014. [PubMed: 25374358, images, related citations] [Full Text]


Creation Date:
Ada Hamosh : 1/29/2015
carol : 02/04/2015
alopez : 1/30/2015

# 616208

AMYOTROPHIC LATERAL SCLEROSIS 22 WITH OR WITHOUT FRONTOTEMPORAL DEMENTIA; ALS22


ORPHA: 803;   DO: 0060355;  


Phenotype-Gene Relationships

Location Phenotype Phenotype
MIM number
Inheritance Phenotype
mapping key
Gene/Locus Gene/Locus
MIM number
2q35 Amyotrophic lateral sclerosis 22 with or without frontotemoral dementia 616208 Autosomal dominant 3 TUBA4A 191110

TEXT

A number sign (#) is used with this entry because of evidence that amyotrophic lateral sclerosis-22 with or without frontotemporal dementia (ALS22) is caused by heterozygous mutation in the TUBA4A gene (191110) on chromosome 2q35.

For a phenotypic description and a discussion of genetic heterogeneity of amyotrophic lateral sclerosis (ALS), see ALS1 (105400).


Clinical Features

In their study of familial ALS caused by mutations in the TUBA4A gene, Smith et al. (2014) found that all patients carrying TUBA4A mutations had spinal-onset classical ALS with upper and lower motor neuron signs. Two cases also developed a cognitive decline of frontal type, consistent with a diagnosis of frontotemporal dementia (FTD; 600274), and another had a first-degree relative with FTD.


Molecular Genetics

Smith et al. (2014) performed an exomewide rare variant burden analysis in 363 index cases with familial ALS (FALS) from 6 countries. In this discovery cohort, Smith et al. (2014) identified 5 nonsynonymous TUBA4A changes, all localized in exon 4 and confirmed by Sanger sequencing. None of the mutations was observed in 4,300 controls from the Exome Variant Server database, and all occurred at highly conserved positions. The mutations included 2 missense mutations in the same residue (R320C, 191110.0001 and R320H, 191110.0002) a nonsense mutation (W407X; 191110.0003) removing the last 41 amino acids, and 2 additional missense mutations (R215C, 191110.0004 and A383T, 191110.0005). Because no relatives of the affected patients were available to test segregation, Smith et al. (2014) sequenced an independent replication cohort comprising 272 index FALS cases and 5,510 internal European American controls for rare damaging exon 4 variants. In the replication cohort, 2 cases (0.65%) were identified versus 2 controls (0.04%, p = 1.5 x 10(-2)). A combined analysis of the discovery and replication cohorts resulted in a statistically significant overabundance of rare variants after multiple test correction (odds ratio = 36, 95% confidence interval: 10-210, corrected p = 4.2 x 10(-3)).


REFERENCES

  1. Smith, B. N., Ticozzi, N., Fallini, C., Gkazi, A. S., Topp, S., Kenna, K. P., Scotter, E. L., Kost, J., Keagle, P., Miller, J. W., Calini, D., Vance, C., and 54 others. Exome-wide rare variant analysis identifies TUBA4A mutations associated with familial ALS. Neuron 84: 324-331, 2014. [PubMed: 25374358] [Full Text: https://linkinghub.elsevier.com/retrieve/pii/S0896-6273(14)00847-2]


Creation Date:
Ada Hamosh : 1/29/2015
Edit History:
carol : 02/04/2015
alopez : 1/30/2015