# 608627

AMYOTROPHIC LATERAL SCLEROSIS 8; ALS8


Phenotype-Gene Relationships

Location Phenotype Phenotype
MIM number
Inheritance Phenotype
mapping key
Gene/Locus Gene/Locus
MIM number
20q13.32 Amyotrophic lateral sclerosis 8 608627 AD 3 VAPB 605704
Clinical Synopsis
   
Phenotypic Series

INHERITANCE
- Autosomal dominant
MUSCLE, SOFT TISSUES
- Weakness
- Atrophy
- Fasciculations
NEUROLOGIC
Central Nervous System
- Lower motor neuron signs in lower limbs or all limbs
- Pyramidal tract signs in upper limbs
- Postural tremor
- Dysarthria
- Dysphagia
- Hypoactive or absent reflexes
- No cognitive impairment
MISCELLANEOUS
- Age of onset from third to sixth decade of life
MOLECULAR BASIS
- Caused by mutation in the vesicle-associated membrane protein-associated protein B gene (VAPB, 605704.0001)
Amyotrophic lateral sclerosis - PS105400 - 32 Entries
Location Phenotype Inheritance Phenotype
mapping key
Phenotype
MIM number
Gene/Locus Gene/Locus
MIM number
1p36.22 Frontotemporal lobar degeneration, TARDBP-related AD 3 612069 TARDBP 605078
1p36.22 Amyotrophic lateral sclerosis 10, with or without FTD AD 3 612069 TARDBP 605078
2p13.1 {Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 DCTN1 601143
2q33.1 Amyotrophic lateral sclerosis 2, juvenile AR 3 205100 ALS2 606352
2q34 Amyotrophic lateral sclerosis 19 AD 3 615515 ERBB4 600543
2q35 Amyotrophic lateral sclerosis 22 with or without frontotemoral dementia AD 3 616208 TUBA4A 191110
3p11.2 Amyotrophic lateral sclerosis 17 AD 3 614696 CHMP2B 609512
5q31.2 Amyotrophic lateral sclerosis 21 AD 3 606070 MATR3 164015
5q35.3 Frontotemporal dementia and/or amyotrophic lateral sclerosis 3 AD 3 616437 SQSTM1 601530
6q21 Amyotrophic lateral sclerosis 11 AD 3 612577 FIG4 609390
9p21.2 Frontotemporal dementia and/or amyotrophic lateral sclerosis 1 AD 3 105550 C9orf72 614260
9p13.3 ?Amyotrophic lateral sclerosis 16, juvenile AR 3 614373 SIGMAR1 601978
9p13.3 Amyotrophic lateral sclerosis 14, with or without frontotemporal dementia 3 613954 VCP 601023
9q34.13 Amyotrophic lateral sclerosis 4, juvenile AD 3 602433 SETX 608465
10p13 Amyotrophic lateral sclerosis 12 3 613435 OPTN 602432
12q13.12 {Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 PRPH 170710
12q13.13 Amyotrophic lateral sclerosis 20 AD 3 615426 HNRNPA1 164017
12q14.2 Frontotemporal dementia and/or amyotrophic lateral sclerosis 4 AD 3 616439 TBK1 604834
12q24.12 Spinocerebellar ataxia 2 AD 3 183090 ATXN2 601517
12q24.12 {Amyotrophic lateral sclerosis, susceptibility to, 13} AD 3 183090 ATXN2 601517
14q11.2 Amyotrophic lateral sclerosis 9 3 611895 ANG 105850
15q21.1 Amyotrophic lateral sclerosis 5, juvenile AR 3 602099 SPG11 610844
16p11.2 Amyotrophic lateral sclerosis 6, with or without frontotemporal dementia 3 608030 FUS 137070
17p13.2 Amyotrophic lateral sclerosis 18 3 614808 PFN1 176610
18q21 Amyotrophic lateral sclerosis 3 AD 2 606640 ALS3 606640
20p13 Amyotrophic lateral sclerosis 7 2 608031 ALS7 608031
20q13.32 Amyotrophic lateral sclerosis 8 AD 3 608627 VAPB 605704
21q22.11 Amyotrophic lateral sclerosis 1 AR, AD 3 105400 SOD1 147450
22q11.23 Frontotemporal dementia and/or amyotrophic lateral sclerosis 2 AD 3 615911 CHCHD10 615903
22q12.2 ?{Amyotrophic lateral sclerosis, susceptibility to} AR, AD 3 105400 NEFH 162230
Xp11.21 Amyotrophic lateral sclerosis 15, with or without frontotemporal dementia XLD 3 300857 UBQLN2 300264
Not Mapped Amyotrophic lateral sclerosis, juvenile, with dementia 205200 ALSDC 205200

TEXT

A number sign (#) is used with this entry because of evidence that ALS8 is caused by heterozygous mutation in the VAPB gene (605704) on chromosome 20q13.3.

For a phenotypic description and a discussion of genetic heterogeneity of amyotrophic lateral sclerosis (ALS), see ALS1 (105400).


Clinical Features

Nishimura et al. (2004) described a Caucasian Brazilian family in which 26 members spanning 3 generations presented with clinical and neurologic signs compatible with the diagnosis of ALS with slow progression. The disorder affected both sexes equally, with no evidence of clinical anticipation. Clinical onset occurred between ages 31 and 45 years, and the cause of death was respiratory failure. Twelve family members were examined. All patients had lower motor neuron symptoms, and 5 also had bulbar involvement.

Chen et al. (2010) reported a 73-year-old man with ALS8, who was not of Brazilian descent. He presented with wasting of the small muscles of the hands. He also had fasciculations of the leg, and later developed speech and swallowing difficulties. The diagnosis was confirmed by nerve conduction studies. The patient had a brother with ALS who died within 4 months of diagnosis from pneumonia, but DNA was not available for testing.


Mapping

Nishimura et al. (2004) performed linkage analysis in the large Brazilian family with atypical ALS and excluded all previously reported ALS loci. They identified a novel locus, here designated ALS8, spanning 2.7 Mb between markers D20S430 and D20S173 on chromosome 20q13.33. Two-point linkage analysis showed a maximum lod score of 6.02 at theta = 0.0 for marker D20S171; multipoint linkage analysis showed a maximum lod score of 7.45 for marker D20S164. No mutations were identified in 3 genes mapping to the ALS8 interval: TUBB1 (612901), CTSZ (603169), and ATP5E (606153). ALS8 is presumably distinct from the form of ALS mapping to chromosome 20p, here designated ALS7 (608031).


Molecular Genetics

Nishimura et al. (2004) found that the autosomal dominant slowly progressive disorder in the large Brazilian family described by Nishimura et al. (2004), characterized by fasciculations, cramps, and postural tremor, was caused by a P56S mutation in the VAPB gene (605704.0001). Subsequently, the same mutation was identified in patients from 6 additional kindreds in which, however, patients demonstrated different clinical courses, such as ALS8, late-onset spinal muscular atrophy (182980), and typical severe ALS with rapid progression. Although it was not possible to link all these families genealogically, haplotype analysis suggested founder effect. Members of the vesicle-associated proteins are intracellular membrane proteins that can associate with microtubules and that have a function in membrane transport. The data suggested that clinically variable motor neuron diseases may be caused by a dysfunction in intracellular membrane trafficking.

Landers et al. (2008) identified the P56S mutation in affected members of a Brazilian family with ALS. The mean age at onset was between 45 and 55 years with survival varying from 5 to 18 years. Mutations in the VAPB gene were not identified in 79 other ALS families. Landers et al. (2008) concluded that VAPB mutations are not a common cause of ALS.

Millecamps et al. (2010) identified the P56S mutation in 1 (0.6%) of 162 French probands with familial ALS. The patient was of Japanese descent, representing the first non-Brazilian reported to carry this mutation. Three other family members had motor neuron disease, suggesting autosomal dominant inheritance. The patient had long disease duration with onset in the legs during the sixth decade. Millecamps et al. (2010) suggested that the finding of the P56S mutation in a Japanese patient may reflect the Portuguese trading connection with the Far East and Brazil in the mid-16th century.

In 1 of 107 non-Brazilian probands with ALS, Chen et al. (2010) identified a heterozygous mutation in the VAPB gene (T46I; 605704.0002). In vitro functional expression studies in COS-7 and neuronal cells showed that the T46I mutation formed intracellular protein aggregates and ubiquitin aggregates, ultimately resulting in cell death. Chen et al. (2010) also postulated that disturbances in lipid metabolism may play a role in the pathogenesis of ALS.


Animal Model

In transgenic mice, Aliaga et al. (2013) found that expression of human VAPB with the ALS8-associated P56S mutation caused various motor behavioral abnormalities, including progressive hyperactivity. Accumulation of mutant VAPB triggered ER stress, leading to increased proapoptotic Chop (DDIT3; 126337) expression in both corticospinal and spinal motor neurons. Mutant transgenic mice experienced significant loss of corticospinal motor neurons, but no obvious degeneration of spinal motor neurons.


REFERENCES

  1. Aliaga, L., Lai, C., Yu, J., Chub, N., Shim, H., Sun, L., Zie, C., Yang, W.-J., Lin, X., O'Donovan, M. J., Cai, H. Amyotrophic lateral sclerosis-related VAPB P56S mutation differentially affects the function and survival of corticospinal and spinal motor neurons. Hum. Molec. Genet. 22: 4293-4305, 2013. Note: Erratum: Hum. Molec. Genet. 23: 3069 only, 2014. [PubMed: 23771029, images, related citations] [Full Text]

  2. Chen, H.-J., Anagnostou, G., Chai, A., Withers, J., Morris, A., Adhikaree, J., Pennetta, G., de Belleroche, J. S. Characterization of the properties of a novel mutation in VAPB in familial amyotrophic lateral sclerosis. J. Biol. Chem. 285: 40266-40281, 2010. [PubMed: 20940299, images, related citations] [Full Text]

  3. Landers, J. E., Leclerc, A. L., Shi, L., Virkud, A., Cho, T., Maxwell, M. M., Henry, A. F., Polak, N., Glass, J. D., Kwiatkowski, T. J., Al-Chalabi, A., Shaw, C. E., Leigh, P. N., Rodriguez-Leyza, I., McKenna-Yasek, D., Sapp, P. C., Brown, R. H., Jr. New VAPB deletion variant and exclusion of VAPB mutations in familial ALS. Neurology 70: 1179-1185, 2008. [PubMed: 18322265, related citations] [Full Text]

  4. Millecamps, S., Salachas, F., Cazeneuve, C., Gordon, P., Bricka, B., Camuzat, A., Guillot-Noel, L., Russaouen, O., Bruneteau, G., Pradat, P.-F., Le Forestier, N., Vandenberghe, N., and 14 others. SOD1, ANG, VAPB, TARDBP, and FUS mutations in familial amyotrophic lateral sclerosis: genotype-phenotype correlations. J. Med. Genet. 47: 554-560, 2010. [PubMed: 20577002, related citations] [Full Text]

  5. Nishimura, A. L., Mitne-Neto, M., Silva, H. C. A., Oliveira, J. R. M., Vainzof, M., Zatz, M. A novel locus for late onset amyotrophic lateral sclerosis/motor neurone disease variant at 20q13. J. Med. Genet. 41: 315-320, 2004. [PubMed: 15060112, related citations] [Full Text]

  6. Nishimura, A. L., Mitne-Neto, M., Silva, H. C. A., Richieri-Costa, A., Middleton, S., Cascio, D., Kok, F., Oliveira, J. R. M., Gillingwater, T., Webb, J., Skehel, P., Zatz, M. A mutation in the vesicle-trafficking protein VAPB causes late-onset spinal muscular atrophy and amyotrophic lateral sclerosis. Am. J. Hum. Genet. 75: 822-831, 2004. [PubMed: 15372378, images, related citations] [Full Text]


Patricia A. Hartz - updated : 07/10/2015
Cassandra L. Kniffin - updated : 12/22/2010
Cassandra L. Kniffin - updated : 9/27/2010
Cassandra L. Kniffin - updated : 10/17/2008
Victor A. McKusick - updated : 10/21/2004
Creation Date:
Victor A. McKusick : 4/29/2004
alopez : 08/11/2016
mgross : 07/10/2015
wwang : 1/5/2011
ckniffin : 12/22/2010
wwang : 9/29/2010
ckniffin : 9/27/2010
wwang : 9/1/2009
mgross : 7/9/2009
wwang : 10/20/2008
ckniffin : 10/17/2008
alopez : 10/25/2004
terry : 10/21/2004
tkritzer : 4/30/2004
tkritzer : 4/30/2004

# 608627

AMYOTROPHIC LATERAL SCLEROSIS 8; ALS8


ORPHA: 803;   DO: 0050752;  


Phenotype-Gene Relationships

Location Phenotype Phenotype
MIM number
Inheritance Phenotype
mapping key
Gene/Locus Gene/Locus
MIM number
20q13.32 Amyotrophic lateral sclerosis 8 608627 Autosomal dominant 3 VAPB 605704

TEXT

A number sign (#) is used with this entry because of evidence that ALS8 is caused by heterozygous mutation in the VAPB gene (605704) on chromosome 20q13.3.

For a phenotypic description and a discussion of genetic heterogeneity of amyotrophic lateral sclerosis (ALS), see ALS1 (105400).


Clinical Features

Nishimura et al. (2004) described a Caucasian Brazilian family in which 26 members spanning 3 generations presented with clinical and neurologic signs compatible with the diagnosis of ALS with slow progression. The disorder affected both sexes equally, with no evidence of clinical anticipation. Clinical onset occurred between ages 31 and 45 years, and the cause of death was respiratory failure. Twelve family members were examined. All patients had lower motor neuron symptoms, and 5 also had bulbar involvement.

Chen et al. (2010) reported a 73-year-old man with ALS8, who was not of Brazilian descent. He presented with wasting of the small muscles of the hands. He also had fasciculations of the leg, and later developed speech and swallowing difficulties. The diagnosis was confirmed by nerve conduction studies. The patient had a brother with ALS who died within 4 months of diagnosis from pneumonia, but DNA was not available for testing.


Mapping

Nishimura et al. (2004) performed linkage analysis in the large Brazilian family with atypical ALS and excluded all previously reported ALS loci. They identified a novel locus, here designated ALS8, spanning 2.7 Mb between markers D20S430 and D20S173 on chromosome 20q13.33. Two-point linkage analysis showed a maximum lod score of 6.02 at theta = 0.0 for marker D20S171; multipoint linkage analysis showed a maximum lod score of 7.45 for marker D20S164. No mutations were identified in 3 genes mapping to the ALS8 interval: TUBB1 (612901), CTSZ (603169), and ATP5E (606153). ALS8 is presumably distinct from the form of ALS mapping to chromosome 20p, here designated ALS7 (608031).


Molecular Genetics

Nishimura et al. (2004) found that the autosomal dominant slowly progressive disorder in the large Brazilian family described by Nishimura et al. (2004), characterized by fasciculations, cramps, and postural tremor, was caused by a P56S mutation in the VAPB gene (605704.0001). Subsequently, the same mutation was identified in patients from 6 additional kindreds in which, however, patients demonstrated different clinical courses, such as ALS8, late-onset spinal muscular atrophy (182980), and typical severe ALS with rapid progression. Although it was not possible to link all these families genealogically, haplotype analysis suggested founder effect. Members of the vesicle-associated proteins are intracellular membrane proteins that can associate with microtubules and that have a function in membrane transport. The data suggested that clinically variable motor neuron diseases may be caused by a dysfunction in intracellular membrane trafficking.

Landers et al. (2008) identified the P56S mutation in affected members of a Brazilian family with ALS. The mean age at onset was between 45 and 55 years with survival varying from 5 to 18 years. Mutations in the VAPB gene were not identified in 79 other ALS families. Landers et al. (2008) concluded that VAPB mutations are not a common cause of ALS.

Millecamps et al. (2010) identified the P56S mutation in 1 (0.6%) of 162 French probands with familial ALS. The patient was of Japanese descent, representing the first non-Brazilian reported to carry this mutation. Three other family members had motor neuron disease, suggesting autosomal dominant inheritance. The patient had long disease duration with onset in the legs during the sixth decade. Millecamps et al. (2010) suggested that the finding of the P56S mutation in a Japanese patient may reflect the Portuguese trading connection with the Far East and Brazil in the mid-16th century.

In 1 of 107 non-Brazilian probands with ALS, Chen et al. (2010) identified a heterozygous mutation in the VAPB gene (T46I; 605704.0002). In vitro functional expression studies in COS-7 and neuronal cells showed that the T46I mutation formed intracellular protein aggregates and ubiquitin aggregates, ultimately resulting in cell death. Chen et al. (2010) also postulated that disturbances in lipid metabolism may play a role in the pathogenesis of ALS.


Animal Model

In transgenic mice, Aliaga et al. (2013) found that expression of human VAPB with the ALS8-associated P56S mutation caused various motor behavioral abnormalities, including progressive hyperactivity. Accumulation of mutant VAPB triggered ER stress, leading to increased proapoptotic Chop (DDIT3; 126337) expression in both corticospinal and spinal motor neurons. Mutant transgenic mice experienced significant loss of corticospinal motor neurons, but no obvious degeneration of spinal motor neurons.


REFERENCES

  1. Aliaga, L., Lai, C., Yu, J., Chub, N., Shim, H., Sun, L., Zie, C., Yang, W.-J., Lin, X., O'Donovan, M. J., Cai, H. Amyotrophic lateral sclerosis-related VAPB P56S mutation differentially affects the function and survival of corticospinal and spinal motor neurons. Hum. Molec. Genet. 22: 4293-4305, 2013. Note: Erratum: Hum. Molec. Genet. 23: 3069 only, 2014. [PubMed: 23771029] [Full Text: https://academic.oup.com/hmg/article-lookup/doi/10.1093/hmg/ddt279]

  2. Chen, H.-J., Anagnostou, G., Chai, A., Withers, J., Morris, A., Adhikaree, J., Pennetta, G., de Belleroche, J. S. Characterization of the properties of a novel mutation in VAPB in familial amyotrophic lateral sclerosis. J. Biol. Chem. 285: 40266-40281, 2010. [PubMed: 20940299] [Full Text: http://www.jbc.org/cgi/pmidlookup?view=long&pmid=20940299]

  3. Landers, J. E., Leclerc, A. L., Shi, L., Virkud, A., Cho, T., Maxwell, M. M., Henry, A. F., Polak, N., Glass, J. D., Kwiatkowski, T. J., Al-Chalabi, A., Shaw, C. E., Leigh, P. N., Rodriguez-Leyza, I., McKenna-Yasek, D., Sapp, P. C., Brown, R. H., Jr. New VAPB deletion variant and exclusion of VAPB mutations in familial ALS. Neurology 70: 1179-1185, 2008. [PubMed: 18322265] [Full Text: http://www.neurology.org/cgi/pmidlookup?view=long&pmid=18322265]

  4. Millecamps, S., Salachas, F., Cazeneuve, C., Gordon, P., Bricka, B., Camuzat, A., Guillot-Noel, L., Russaouen, O., Bruneteau, G., Pradat, P.-F., Le Forestier, N., Vandenberghe, N., and 14 others. SOD1, ANG, VAPB, TARDBP, and FUS mutations in familial amyotrophic lateral sclerosis: genotype-phenotype correlations. J. Med. Genet. 47: 554-560, 2010. [PubMed: 20577002] [Full Text: http://jmg.bmj.com/cgi/pmidlookup?view=long&pmid=20577002]

  5. Nishimura, A. L., Mitne-Neto, M., Silva, H. C. A., Oliveira, J. R. M., Vainzof, M., Zatz, M. A novel locus for late onset amyotrophic lateral sclerosis/motor neurone disease variant at 20q13. J. Med. Genet. 41: 315-320, 2004. [PubMed: 15060112] [Full Text: http://jmg.bmj.com/cgi/pmidlookup?view=long&pmid=15060112]

  6. Nishimura, A. L., Mitne-Neto, M., Silva, H. C. A., Richieri-Costa, A., Middleton, S., Cascio, D., Kok, F., Oliveira, J. R. M., Gillingwater, T., Webb, J., Skehel, P., Zatz, M. A mutation in the vesicle-trafficking protein VAPB causes late-onset spinal muscular atrophy and amyotrophic lateral sclerosis. Am. J. Hum. Genet. 75: 822-831, 2004. [PubMed: 15372378] [Full Text: https://linkinghub.elsevier.com/retrieve/pii/S0002-9297(07)63787-2]


Contributors:
Patricia A. Hartz - updated : 07/10/2015
Cassandra L. Kniffin - updated : 12/22/2010
Cassandra L. Kniffin - updated : 9/27/2010
Cassandra L. Kniffin - updated : 10/17/2008
Victor A. McKusick - updated : 10/21/2004
Creation Date:
Victor A. McKusick : 4/29/2004
Edit History:
alopez : 08/11/2016
mgross : 07/10/2015
wwang : 1/5/2011
ckniffin : 12/22/2010
wwang : 9/29/2010
ckniffin : 9/27/2010
wwang : 9/1/2009
mgross : 7/9/2009
wwang : 10/20/2008
ckniffin : 10/17/2008
alopez : 10/25/2004
terry : 10/21/2004
tkritzer : 4/30/2004
tkritzer : 4/30/2004