Julianna’s Adventures:
NEW:
For the month of April, everyone who donates to CMTA for Julianna will be in a drawing for an autographed (by Alex) and thumb printed (by J) copy of Julianna’s Adventures. If you donate, please send me an e-mail if you would like to be included in the drawing:
Julianna’s book is now available on Lulu.com for $20. All proceeds will go to CMTA. Please buy a copy, spread the world, and help Julianna create a (REAL) world with CMT.
To buy the book, go here:
CMTA (Charcot-Marie-Tooth Association)
My nerves don’t let me breathe or walk so well. — Julianna Snow, age 5
CMTA is a 501(c)(3) federally recognized charity. This organization has a 4 star rating by Charity Navigator and its vision is imagining a world without CMT. It advocates, provides resources and funds research.
Our goal is to raise $60,000 for the CMTA. Please give in Julianna’s honor here.
The following businesses in the Vancouver, WA area are doing the following to raise money for CMTA in honor of Julianna.
Jarbo (708 SW Alder Street, Portland OR 97205, T 503-523-7838) will donate 10% of sales from customers who call and request the “Princess Julianna Experience.”
I have 4 children, I read Juliannas story a couple of months ago, googled her today to see how she was doing and found your blog. Her story has given me more patience with my children, I am so grateful for what I have and I pray for Julianna to recover, I so, believe in miracles. I pray for her to be able to have the babies she wants, and to be able to eat and do things that 5 year olds do. She is an amazing child, one of my heroes. Your son is also one of my heroes, he is an amazing brother. Seeing the pictures on your blog, you see the love they have for each other. Thank you so much for sharing this story, you should sahre it as much as possible !
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Little one, you are adorable! My heart aches for your suffering little sister, it makes me cry. But my Spirit jumps for joy when I read your words, “Don’t worry, God will take care of me.” I cry, even now yet not for sadness sake. Your words changed tears of sadness to tears of joy. Wow, so much power in such a small package. It is said that we find Gods Strength with-in our own weakness. In you I see it is true.
Again, U R ADORABLE! -daniel knight
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my love and prayers to you.
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