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# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Search and find support organizations below. If you are looking for organizations related to a specific disease, you can find them on our Disease Pages. For that, you may use the disease search feature above.

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Displaying 1-20 of 823 results.
Area Served: National
Established: 2004
Nonprofit?: No
Medical Advisory Board: Yes

ALD Life

Disease Support Group
Last Updated: 3 Jan 2019
A charity to promote awareness, research and prevention of Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN). ALD Life enables sufferers of ALD and AMN worldwide a forum to come together to support and advise each other. We provide financial and emotional support ...
Area Served: International
Established: 1995
Nonprofit?: Yes
Medical Advisory Board: Yes

Alstrom Syndrome International

Disease Support Group
Last Updated: 3 Jan 2019
Alstrom Syndrome International's mission is to provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.
Area Served: International
Established: 2012
Nonprofit?: No
Medical Advisory Board: Yes

Bloom's Syndrome Association, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the Association is to foster interactions among its members, so that they might learn from and support one another; to raise funds for research to advance treatments and a cure for Bloom’s syndrome; and to raise public ...
Area Served: International
Established: 1986
Nonprofit?: Yes
Medical Advisory Board: Yes

Celiac Sprue Association USA, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
Established: 2002
Nonprofit?: No
Medical Advisory Board: No

Citizens for Quality Sickle Cell Care-SCDAA-Northern, CT Chapter, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
To ensure the availability and accessibility of quality and comprehensive medical care and support services for children and adults in northern Connecticut with Sickle Cell Disease and other related disorders.
Area Served: National
Established: 1970
Nonprofit?: No
Medical Advisory Board: No

Coeliac Society of Ireland

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the Coeliac Society of Ireland is to improve the quality of life for Coeliacs and others who benefit from a gluten-free diet for medical reasons.
Area Served: International
Established: 2009
Nonprofit?: No
Medical Advisory Board: Yes

Dravet Syndrome Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.
Area Served: National
Established: 1974
Nonprofit?: Yes
Medical Advisory Board: No

Gluten Intolerance Group

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the Gluten Intolerance Group of North America® is to support persons with gluten intolerances, celiac disease, dermatitis herpetiformis, and other gluten sensitivities, through consumer and industry services and programs that positively promote healthy lives.
Area Served: International
Established: 1994
Nonprofit?: Yes
Medical Advisory Board: No

Hepatitis Foundation International

Disease Support Group
Last Updated: 3 Jan 2019
Hepatitis Foundation International is dedicated to promoting wellness and healthy lifestyles for all individuals in order to reduce the incidence of preventable diseases that affect the liver’s health including: obesity, diabetes, fatty liver, high cholesterol, cardiovascular disease, hepatitis, HIV/AIDS, and ...
Established: 2006
Nonprofit?: Yes
Medical Advisory Board: Yes

In Need Of Diagnosis, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
INOD's mission is to provide help and support for individuals distressed with disorders that have eluded medical diagnosis and to identify and encourage the implementation of protocols that will facilitate quicker and more accurate diagnosis. Provide collective identity. Provide education ...
Area Served: United States
Established: 1999
Nonprofit?: Yes
Medical Advisory Board: Yes

Inflammatory Breast Cancer Research Foundation

Disease Support Group
Last Updated: 3 Jan 2019
Our mission is to assist scientists and researchers in their quest to determine the definitive causes of inflammatory breast cancer. The Inflammatory Breast Cancer Research Foundation seeks to assist them in their work so effective and meaningful detection and ...
Area Served: International
Established: 2007
Nonprofit?: Yes
Medical Advisory Board: Yes

International Rett Syndrome Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Area Served: International
Established: 1992
Nonprofit?: No
Medical Advisory Board: Yes

Joubert Syndrome and Related Disorders Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the Joubert Syndrome and Related Disorders Foundation is to support, educate, and serve individuals worldwide who are diagnosed with Joubert syndrome and other related disorders, and their families, friends, and caregivers. Our support networks ...
Area Served: United States
Established: 1989
Nonprofit?: Yes
Medical Advisory Board: Yes

Klinefelter Syndrome & Associates, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives. http://www.genetic.org/About/MissionStatement.aspx
Area Served: United States
Established: 1977
Nonprofit?: Yes
Medical Advisory Board: Yes

Lupus Foundation of America, Inc.

Disease Support Group
Last Updated: 3 Jan 2019
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. ...
Area Served: United States
Established: 1970
Nonprofit?: Yes
Medical Advisory Board: Yes

Multiple Sclerosis Association of America

Disease Support Group
Last Updated: 3 Jan 2019
MSAA's mission is to enrich the quality of life for everyone affected by multiple sclerosis. MSAA also serves to promote greater understanding of multiple sclerosis and the diverse needs and challenges of people with MS.
Area Served: United States
Established: 1986
Nonprofit?: Yes
Medical Advisory Board: Yes

Multiple Sclerosis Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the Multiple Sclerosis Foundation, Inc. is to provide programs and support services to those persons affected by MS that help them maintain their health, safety, self-sufficiency, and personal well-being; and to heighten public awareness of multiple sclerosis in ...
Area Served: United States
Established: 2006
Nonprofit?: Yes
Medical Advisory Board: Yes

Myotonic Dystrophy Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The Myotonic Dystrophy Foundation (MDF) exists to enhance the quality of life of people living with myotonic dystrophy (DM), and to maximize research efforts focused on finding treatments and a cure for this disease, through community support, education, advocacy and ...
Area Served: United States
Established: 1970
Nonprofit?: Yes
Medical Advisory Board: No

National Headache Foundation

Disease Support Group
Last Updated: 3 Jan 2019
The National Headache Foundation exists to enhance the healthcare of individuals with headache. It is a source of help to their families, physicians and allied healthcare professionals who treat them, and to the public. The NHF accomplishes its mission by ...
Area Served: United States
Established: 1946
Nonprofit?: Yes
Medical Advisory Board: Yes

National Multiple Sclerosis Society

Disease Support Group
Last Updated: 3 Jan 2019
The mission of the National Multiple Sclerosis Society is to mobilize people and resources so everyone affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost, and end MS forever. ...