IRDiRC

The European Conference on Rare Diseases & Orphan Products (ECRD)

IRDiRC is an associate partner of the ECRD. The event is recognised globally as the largest, … Read more

Yakup’s Journey to Hope

"Yakup's Journey to Hope" was created in collaboration with the GA4GH Driver Project and The … Read more

Have your say and contribute to the strategic research agenda for a Public-Private Partnership for Health Innovation under Horizon Europe!

The goal is to create a unique platform that does not exist anywhere else, a European multi-sector … Read more

Dr. Annemieke Aartsma-Rus’s video on IRDiRC

https://www.youtube.com/watch?v=8XtalWZPuQM&feature=youtu.be Dr. Annemieke Aartsma-Rus from … Read more

RE(ACT) Congress – IRDiRC Conference

11 - 14 March 2020. Berlin, Germany EARLY REGISTRATION IS OPEN, SUBMIT YOUR … Read more

New IRDIRC Recognized Resource: The Model Organism Aggregated Resources for Rare Variant ExpLoration (MARRVEL)

MARRVEL (Model organism Aggregated Resources for Rare Variant ExpLoration) is a search engine that … Read more

IRDiRC’s State of Play of research report

The International Rare Diseases Research Consortium (IRDiRC)’s report “State of Play of Research in … Read more

Dr Lucia Monaco interview on Rare Diseases

The Chair  of the Consortium Assembly, Dr Lucia Monaco, has been recently interviewed … Read more

Task Force Opening: Clinical Research Networks for Rare Diseases

The Interdisciplinary Scientific Committee (ISC) is establishing a Task Force on Clinical Research … Read more

Durhane Wong Rieger elected as Chair of the Patient Advocacy Constituent Committee

We are pleased to announce the election of Dr Durhane Wong Rieger, President & CEO of the … Read more