| 트윗 |
|
PF Foundation
@PFFORG
|
49분 |
|
We appreciate that we were able to participate in such a great opportunity. Thank you for helping raise awareness for pulmonary fibrosis. twitter.com/nih_nhlbi/stat…
|
||
|
||
|
|
PF Foundation
@PFFORG
|
1시간 |
|
Thank you for having us. We appreciate your support, and this opportunity in spreading awareness and in working toward a cure for #pulmonaryfibrosis. twitter.com/ChrisCoons/sta…
|
||
|
|
||
| PF Foundation 님이 리트윗했습니다 | ||
|
Toby Maher
@TobyMMaher
|
2월 2일 |
|
Anti-fibrotic therapy improves survival by several years. Good data from open label longterm studies and international registries. Per @KaminskiMed we seem determined as a community to underestimate the step change we have seen in IPF outcomes. I'd say wrong. pic.twitter.com/IwZdE2s4XB
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 4일 |
|
A trial of inhaled pirfenidone (Esbriet) to treat IPF was designed to test safety and to see if pirfenidone makes it into the lungs. Larger studies will help to determine its effectiveness. ow.ly/haiw30nzLTi
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 3일 |
|
"The one who removes a mountain begins by carrying away small stones." - Chinese proverb pic.twitter.com/owYNC7izAP
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 3일 |
|
Stay warm this winter with the hottest ticket in town- a seat at Broadway Belts for PFF! Don't miss this night of premium cocktails, lavish cuisine, and sizzling performances, sponsored by Broadway Cares. Meet the talented performers & get your tickets at BroadwayBeltsForPFF.org. pic.twitter.com/uoYgNFCg9X
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 2일 |
|
Gary and Marianne were married just two and a half years when Gary was diagnosed with idiopathic pulmonary fibrosis. As a #caregiver, Marianne describes the difficulties of dealing with the disease as it progresses, and how she takes care of herself. youtu.be/rG1obbBnrp4
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 1일 |
|
or am970theanswer.com to learn more.
A special shout out to one of our amazing event sponsors, Daryl Roth – thank you!
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 1일 |
|
Have you gotten your tickets to this year’s event being held on 2/25 at the Edison Ballroom in NYC? Secure your seat at BroadwayBeltsForPFF.org & be sure to check out the Bagels and Broadway with Valerie Smaldone radio show this Sat. from 9-10 am on AM970
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
2월 1일 |
|
#FlashbackFriday to last year’s Broadway Belts for PFF! It was an incredible evening that brought the PF and Broadway communities together for some unforgettable performances! ow.ly/UUln30nwP8Q
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 31일 |
|
We’re thrilled to welcome @bw51official for a special performance at Broadway Belts for PFF! Williams joined our sponsor @boehringerus for the #BreathlessIPF campaign to honor his father. Learn more at broadwaybeltsforpff.org. pic.twitter.com/kgOfXyiJnb
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 31일 |
|
Our thoughts are with pulmonary fibrosis advocate @JHowardx24 today. Jordan lost his father, Dr. Reginald B. "DOC" Howard, to PF 12 years ago. Jordan honors his father's memory with the mantra to keep believing in & working toward a cure. He is a beacon of hope to our community. pic.twitter.com/3OIx1BnMbt
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 31일 |
|
There is still time! Through tomorrow, Jan. 31, you can help match @JHowardx24 generous fundraising campaign in conjunction with the Chicago Bears winning season. Donate at secure.qgiv.com/for/2jhbwc/. pic.twitter.com/0ne0jt4mP9
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 30일 |
|
Get a patient's perspective on life with idiopathic #PulmonaryFibrosis in @PeerView’s #CME activity with @davidlederer and Dr. Marilyn Glassberg. peerview.com/KAZ804
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 30일 |
|
The PFF YouTube channel features more than 120 videos about pulmonary fibrosis. Subscribe to our channel to hear from the experts, people living with PF, and advocates who are fighting for progress in the search for a cure.
Explore videos ⬇️
youtube.com/c/pulmonaryfib… pic.twitter.com/MZ7ZfLE2fA
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 29일 |
|
Do you have questions about exposure related pulmonary fibrosis? When you register, you have the opportunity to submit a question, and the experts may answer it during the webinar!
Submit your questions and register now for tomorrow's webinar ⬇️
register.gotowebinar.com/register/50286… pic.twitter.com/DFbEwKa5wW
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 27일 |
|
We are continuing to spread the word that #NotEveryoneBreathesEasy, and our campaign has made its way to WebMD magazine! You can read the latest issue and view our full-page ad at your next doctor's visit. pic.twitter.com/b72KanfhTh
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 26일 |
|
No one needs to go through the journey with pulmonary fibrosis alone. Meeting others living with PF and becoming part of your local PF community can offer friendship and support. youtu.be/EgO6WkFXOWk
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 25일 |
|
Don't forget! Our next free webinar, "Exposure Related Pulmonary Fibrosis," is next Wednesday at 12PM CST.
Register now! ⬇️
register.gotowebinar.com/register/50286… pic.twitter.com/T1isk02ISV
|
||
|
|
||
|
|
PF Foundation
@PFFORG
|
1월 24일 |
|
Announcing the #PFFWalk 2019!
✅ New York City: April 27, Riverside Park
✅ Chicago: September 15, Diversey Harbor
✅ Washington, DC: October 12, National Harbor
✅ Dallas: October 26, Cypress Waters
✅ Virtual
Register now at secure.qgiv.com/event/941821/ pic.twitter.com/Yxjk01L2oq
|
||
|
|
||