debra of AmericaVerified account

@debraOfAmerica

Only US charity funding research for a cure + free programs for Epidermolysis Bullosa - Watch/Share our EB commercial

New York
debra.org
Joined September 2011
460 Photos and videos Photos and videos

Tweets

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  1. Pinned Tweet
    Oct 25

    Meet Ella, the little girl who inspired the campaign. Please join us in making her big wish come true:

    22 replies 298 retweets 591 likes
  2. Dec 8

    New "Ask the Nurse" post on our blog: ! This one focuses on the revolutionary skin graft procedure that's recently been covered by , , , + other major news sources.

    1 like
  3. Dec 7

    Thank you to real-world superhero for raising awareness and supporting the Community! 😍

    Thanks to everyone at and actor for helping to raise much-needed awareness to ! Visit to get your raffle ticket to win the print by |
    18 retweets 48 likes
  4. Dec 5

    Tackling holiday shopping lists? If you're thinking of making an purchase, please visit to help support the thousands who live with EB. With every purchase you make, a percentage will be donated to debra of America.

    2 retweets 7 likes
  5. Dec 4

    Calling all North Carolinians! 📢 Join supporter + EB advocate, John Peluso for a fun night at the Sour Barn Craft Brewery to raise money for EB. Attendance is free!

    2 retweets 2 likes
  6. Dec 1

    We were thrilled to have DEBRA Spain () at the debra of America office this week 😀 Together, !

    Nuestra compañera Ana María ha disfrutado de unos días muy especiales en compartiendo e intercambiando experiencias y conocimientos con nuestros compañeros estadounidenses ¡Muchas gracias por acogerla tan bien!@debraOfAmerica Thank you very much!
    3 likes
  7. Nov 30

    Are you playing ? If not, we're thinking that you should! 10-year-old Ella longs to play a game of tag but due to her EB, she can't. That's why we're creating an unforgettable virtual game! Learn more at

    1 retweet 2 likes
  8. Nov 28

    It's ! Play to celebrate: post a selfie with a sign or a short video of yourself saying "Tag, Ella! You're It!" Don't forget the hashtag () in the caption 🙂

    1 reply 4 retweets 15 likes
  9. Nov 27

    Registration for the 2018 Bank of America ends this Thurs, 11/30! The Marathon will be held on Oct 7, 2018 and has free, guaranteed entries to the race! Email [email protected] to learn more or to join 🥇

    3 likes
  10. Nov 27

    Tomorrow is ! In celebration, give Ella the gift of a game of tag 😍Post a selfie with a sign or record a short video saying "Tag, Ella! You're it!" Don't forget the hashtag in your caption!

    3 retweets 7 likes
  11. Nov 16

    Now's the time to apply your child or teen with EB to camp! We've compiled a list of EB-friendly camps to provide parents with the info they need to choose a camp that best suits their child:

    1 retweet 3 likes
  12. Nov 15

    Happy ! Did you know that each box of wound care supplies that we send to an individual or family in need is valued at approximately $1,500? Visit for more info.

    1 retweet 2 likes
  13. Nov 10

    New "Ask the Nurse" post is up on our blog! This one focuses on dealing with biofilm in those with EB. Check it out:

    1 retweet 3 likes
  14. Nov 9

    It’s time to start gearing up for the Washington D.C. leg of the Marathon Series on 3/10/2018! Join and rock our capital city, while raising awareness & funds to help those with EB. To join or for more info, please email [email protected] 🎸

    1 retweet 1 like
  15. Nov 8

    “Whenever I speak about EB, I find myself saying: until there is a cure ...” says Kimberly Morel, who directs an EB clinic at Columbia University. “Now it seems there is more hope on the horizon for this terrible disease.”

    1 reply 7 retweets 8 likes
  16. Nov 8

    Tag , you're it! Thanks for featuring the campaign. To learn more, please visit:

    "It could be really nice if there was some way that I could play tag"
    2 retweets 1 like
  17. Nov 3

    A repeal of the Tax Credit would impact the Community! Learn more + take action via the link below.

    TAKE ACTION. Tell Congress to oppose the repeal of Tax Credit! Email ur Senators & Representative today:
    6 retweets 5 likes
  18. Nov 1

    Thank you for playing !

    Ella, your courage is inspiring. The entire Castle Creek team is proud to play
    2 likes
  19. Nov 1

    The 19th Annual was a night to remember! Check out photos from the evening here: 📸🌟

    1 like
  20. Oct 27

    Thank you to our guests, honorees, & generous sponsors for making our 19th a success!

    1 retweet 5 likes
  21. Oct 27

    Thank you for playing ! 😍

    World's most courageous group of young people- Ella, Rafi, Ellie, & Zack- battling EB, the worst disease you've never heard of
    1 retweet 3 likes

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