29 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
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people with rare diseases
600+
events worldwide
106
countries involved
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Tommy’s RTD Journey (as told by his mom!)
Before his diagnosis, Tommy was a normal, happy little boy. He was a little developmentally delayed, but we didn’t think much of it. He was… Continue reading Tommy’s RTD Journey (as told by his mom!)
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My story with Anorrectal Malformation
Primeramente les cuento que vivimos en Tandil, Provincia de Buenos Aires. En el 2017 nace mi segundo hijo FermÃn. Era muy extraño todo con él,… Continue reading My story with Anorrectal Malformation
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Love Isn’t Rare
Growing up in a family impacted by Huntington’s Disease – a rare and incurable genetic disorder, I feel compelled to share my exceptional life experiences… Continue reading Love Isn’t Rare
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
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Thousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
On February 8 at 2PM (CET) the Rare Disease Day team is hosting a webinar on “Driving Awareness by amplifying young voices in the rare… Continue reading Learn to engage your young community
With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start… Continue reading Join the Countdown: Rare Disease Day 2024 Starts Now
In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers