I'm 24, my mom is in her mid 50s and has been in a nursing home since I was 17. there are so many things about dementia that I never thought of until I had to deal with them personally. a big one for me was the losing of teeth. I never thought of this aspect until my mom couldn't brush her teeth anymore and of course the nursing home never does. she had a few pulled last year but she just had a second to front tooth pulled and now she sticks her tongue through the space and giggles. it's sad but completely adorable and funny at the same time. dementia is such a weird thing to deal with. what have you learned?
Hey there, I see a lot of questions about aged care and dementia care around here. In the home I work at, we have a wing dedicated to those living with severe dementia, and I work there full time. AMA, I guess!
My mother, whose doc doesn’t think she has dementia, has been on an angry tear against everyone who has tried to take care of her since the death of my dad eight years ago. She is now ninety; while she can shower and dress herself, can’t do simple things like make a sandwich or she’ll unload a dishwasher full of dirty dishes. My DH and I sold our house and moved in with her after dad’s passing; DH was retired and I retired three years later (a little earlier than planned). She started accusing us both of stealing her money, tinkering with the phones, poisoning her, among other things. After nearly six years, she ran away and called my dad’s cousin to come get her. He found her a very nice senior complex to live in near him and, with her blessing at the time, made arrangements to put her home on the market. That lasted three months, then she decided she wanted to go home. By this time, she and I had a final blowout, and DH and I moved back to our prior city. My brother stepped in to move in with her and is still living with her. Some dear friends would stay alternate weekends so DB could see his wife and get a break,
Since then, she’s gone the same route with the friends and they are not going back, so DB gets no break.
I’m not sure where he can go from here, but I don’t need or want him having a breakdown, Since her doc won’t even consider that she has dementia, we can’t get a referral to get a diagnosis.
TL;DR. My mother’s nasty disposition and anger has chased everyone willing to take care of her away, but she can’t take care of herself. Don’t know what possible next steps might be and I’ve pretty much been forced by Mom out of the picture.
My nan was diagnosed with parkinsons syndrome 11 years ago we thought she was coping well last night she left her flat and got lost she knocked on a shop door saying she had been kidnapped the people called the police they spent hours trying to convince her to go to the hospital when she finally agreed they told us she has dementia everyone is broken up about it my nan is the head of the family the once fearless woman is now a scared lady . I've been a carer for over 10 years I've worked in nursing homes care home everything I hate knowing what will happen I dont think my family is prepared. I just wish ....
My grandmother (90s), who has always been a very strong and confident woman, has (what we assume to be) dementia. After my grandfather's passing, she began showing subtle signs, but it was always questionable. It doesn't help that she has refused to see a doctor for the majority of her life.
It began with her accusing extended family members of stealing items from her home. To make matters worse, those family members completely washed their hands of the situation rather than offering further assistance. They are now 100% out of the picture. At this point, all of the burden has fallen to my parents, who not only care for her nearly full time, but also are taking care of my other grandmother with a slew of issues (mostly physical ailments).
It is now reaching a point where I fear it is affecting the health of my parents who are living in a near constant state of stress. My grandmother has become extremely angry, often saying very hurtful things to those that are trying to assist her. She makes calls to my sibling with worrisome statements, but then acts fine when others call about those statements (if she answers at all). She is slowly starting to turn against everyone by assuming they are somehow out to get her.
With a person who refuses to speak with people, refuses to leave the house, refuses to see a doctor, and believes everyone is out to get them, how can we possibly proceed? I had hoped she could stay in her home as she is still able bodied, but at this point we can't continue in this state. That said, it would take physical restraints to actually get her to leave the house, which at this age I don't believe is an option. Any advice much appreciated...
I am a patient and still having good days but today wasn't one of them I was diagnosed 4 years ago and have mostly been in denial. I have gotten to the point I have to get my affairs in order but I need to know what it will cost me. From reading (which I don't do well), I need -
A will
A trust
Power of attorney
Living will
Hippa Release
Letter of intent
I had some of these done so they should be current.
Have I covered it all? I talked to a Attorney's offices shopping around and they said if they gave me advice, it ran $250/hr if I took it or not. The attorney that did my MIL's charged $3000. This was before my diagnosis but I stayed out as it was my wife's family business and MIL does not like to discuss it. Afterward, they did not feel they got their money's worth but as I said, I did not ask questions.
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This subreddit is dedicated to information and support for people dealing with dementia. Dementia is an abnormal, serious loss of cognitive ability, often seen in older people as a result of degenerative disease. It can also be caused by head trauma, getting blown up by an IED, drug abuse, and many other causes. Some of the most common forms of dementia are: Alzheimer's disease, vascular dementia, frontotemporal dementia, semantic dementia and dementia with Lewy bodies.