The ALS AssociationAkun terverifikasi

@alsassociation

The ALS Association National Office / Fighting Lou Gehrig's Disease

Washington, D.C.
alsa.org
Bergabung Februari 2009
1.714 Foto dan video Foto dan video

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  1. 8 jam yang lalu

    What a great meeting – we came away with new colleagues and ideas to help ppl living w ! Thank you to our wonderful hosts , & . Looking forward to Glasgow next year!

    1 balasan 5 retweet 15 suka
  2. 9 jam yang lalu

    Congratulations to Bernard Muller from Project MinE - recipient of the Patient Impact Award at ! So inspiring and well deserved!

    3 retweet 15 suka
  3. 9 jam yang lalu

    In the last year, more than 48,000 people viewed, downloaded, or ordered our new educational materials, including the Living with ALS and Families and ALS resource guides and medical information packets.

    3 retweet 5 suka
  4. 9 jam yang lalu

    Whether it’s , gene therapy, or RNA, we’ve made major progress in innovative research in 2017. Find out more about the progress we made this year:

    6 retweet 9 suka
  5. 12 jam yang lalu

    A former Milton Safenowitz postdoctoral fellow Marka van Blitterswijk is looking at people w C9ORF72 mutation to identify new disease pathways which translate into new therapeutic targets. Great work!

    4 retweet 8 suka
  6. 12 jam yang lalu

    Advocates built support for the ALS Disability Insurance Access Act in Congress this year, a key priority to improve access to needed services for people living with .

    6 retweet 5 suka
  7. 12 jam yang lalu

    Great to hear the fast progress out of and its new partnership with Project MinE . Collaborations are key to finding a cure for ! Learn more:

    7 retweet 16 suka
  8. 13 jam yang lalu

    We wrapped up the ALS IMPACT Survey in 2017! With the help of the almost 1,000 responses from our community, we’ll be better able to develop strategies to empower both caregivers and people living with ALS!

    3 retweet 9 suka
  9. 13 jam yang lalu

    The ALS Association and our advocates joined with other leading organizations to protect the rights of people living with who are on Medicaid, ensuring access to care.

    9 retweet 27 suka
  10. 9 Des

    Throughout 2017, we collaborated with 130+ clinical partners, incorporating American Academy of Neurology best practices.

    3 retweet 10 suka
  11. 9 Des

    IMPACT ALS survey results shows that burden of is high – another step closer to establishing the burdens of daily life & identifying unmet medical needs of our community. We are excited to continue these critical studies! More results coming soon.

    3 retweet 4 suka
  12. 9 Des

    Part of ALS PREFER – IMPACT ALS survey - was sent to people w & caregivers to gather data about disease burden, functional outcomes and treatment views. Thrilled to see a great response – 1,534 participants. Thank you to all that took part!

    3 retweet 8 suka
  13. 9 Des

    It is important for ppl w to give input & integrate into drug development process. Together w & collaborators, we are developing ALS PREFER – a research driven platform building robust ALS patient preference studies. Thank u Lucie for presenting today!

    4 retweet 6 suka
  14. 9 Des

    Dr. Bjorn Oskarsson FL, Director of one of our Certified Clinics, is presenting an analysis of studies treating muscle cramps for those living with . So helpful to be as informed as possible.

    1 balasan 5 retweet 15 suka
  15. 9 Des

    After being newly diagnosed w , many people wonder if they can still exercise. A brand new study by funded Dr. Maragakis is showing that you still can exercise safely and tolerably! . Check out our blog for more:

    11 retweet 11 suka
  16. 9 Des

    In 2004 we invested $1.5 million in therapy research. Fast forward to 2017, and we’ve already seen one approved drug & one more treatment drugs in clinical trials.

    6 retweet 7 suka
  17. 9 Des

    Close collaborator, Dr. Kevin Horton & National Registry presents findings about how close ppl living with ALS are to clinics, 1 key to ensuring that all members of the ALS community have access to the care & support they need. Thank u for your hard work!

    2 retweet 5 suka
  18. 9 Des

    Smoking cigarettes is a well-known cause of many health problems. Dr. Peters shows new findings presented at suggesting smoking increases the risk of , too.

    2 balasan 10 retweet 11 suka
  19. 9 Des

    On stage now at Sheila Essey-award winner Adriano Chio presents studies to explore number of events that are necessary to cause neurodegeneration & how genetic mutations impact this number.

    2 retweet 5 suka
  20. 9 Des

    Dr. Michael Benatar , one of our funded researchers, discusses insight into the longitudinal biomarker study of blood and CSF - called NfL- shows possible first biochemical biomarker of pre-symptomatic disease. Very exciting!

    7 retweet 7 suka

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