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Bloodwise / Lisa Griffith
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bloodwise_uk
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Hi, I’m Lisa. Mum to Hugo – cancer warrior, Bloodwise Ambassador, Blogger – Life Love and Leukaemia. Taking over the Bloodwise account today only.
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37,581
ٹویٹس
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3,381
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30,714
فالورز
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| 2 گھنٹے |
@bloodwise_uk
Bloodwise / Lisa Griffith
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Thanks so much for joining me on this v special day and for the likes, comments and RTs. It’s been amazing! Tomorrow sees the start of another chapter of our lives-Bring it on! We are off out now to continue the celebrations. You can follow what Hugo does next on @LLandLeukaemia pic.twitter.com/88SAKse82K
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| 3 گھنٹے |
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Bloodwise / Lisa Griffith
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I feel proud, so very proud. Hugo has fought this battle with love in his heart and a smile on his face. You did it Hugo, you did it ❤️ pic.twitter.com/uAlHAyZIVu
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| 3 گھنٹے |
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Bloodwise / Lisa Griffith
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The Big Moment! twitter.com/LLandLeukaemia…
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| 4 گھنٹے |
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Bloodwise / Lisa Griffith
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I have 2 very excited boys and a pretty excited mum and dad too! Last chemo coming up....
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| 5 گھنٹے |
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Bloodwise / Lisa Griffith
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Hugo has had many different medications. Some by IV, but mostly orally in a syringe that we do at home. Some days that can more than 11 doses in one day. His very last dose is mercaptopurine, which he will take in about an hour and a half. I'm off to pick him up from school now.
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| 6 گھنٹے |
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Bloodwise / Lisa Griffith
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Hugo has been amazing. He always manages to smile. His strength and resilience are inspiring. He has come so far, despite all he has endured. But it shouldn't have to be like this and I know Bloodwise won't stop until no child has to spend their childhood fighting cancer. pic.twitter.com/6vlOwNPvui
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| 6 گھنٹے |
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Bloodwise / Lisa Griffith
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I'm feeling hopeful we will be able to take what we have been through, the strength we have discovered and use it to create a wonderfully normal family life. Hopefully we will be able to look forward rather than back and the good feelings will outweigh the bad. pic.twitter.com/ZMjEpJ2LeI
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| 6 گھنٹے |
@bloodwise_uk
Bloodwise / Lisa Griffith
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A blood cancer diagnosis affects the whole family and can be particularly tough on siblings. This is a blog I wrote about Hugo's amazing big brother Henry. This has been his fight too lifeloveandleukaemia.blogspot.com/2018/05/my-oth…
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| 7 گھنٹے |
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Bloodwise / Lisa Griffith
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I feel so tired. The years of treatment have knocked away at my confidence and enthusiasm. Our life has been on hold while we focus on Hugo. It feels selfish to be thinking of my needs, but I can't help but wonder, what do I do now? How do I get my spark back? Am I alone in this?
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| 7 گھنٹے |
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Bloodwise / Lisa Griffith
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During treatment Hugo had sickness, hair loss, exhaustion, pneumonia, liver failure and was unable to walk for 9 months. There's been daily medication, blood and platelet transfusions, x-rays, scans and tests. This is why Bloodwise continue to fund research into kinder treatments pic.twitter.com/BJYgUdlVry
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| 7 گھنٹے |
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Bloodwise / Lisa Griffith
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I'm so excited to look forward. There is a whole world of new possibilities out there, so many adventures for us to enjoy, free from the restraints leukaemia has placed on our lives. I am ready to embrace and enjoy every single moment. pic.twitter.com/XZEjWOi4a3
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| 8 گھنٹے |
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Bloodwise / Lisa Griffith
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Right now Hugo is probably sitting with his friends, eating lunch. I wonder if he has any real understanding of what today means. Leukaemia, medication and hospital is all he's ever really known. What will he make of leaving it all behind lifeloveandleukaemia.blogspot.com/2018/09/leavin… pic.twitter.com/hlX0q7KvIO
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| 8 گھنٹے |
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Bloodwise / Lisa Griffith
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I am so thankful that we have made it to this point. So grateful for the research and trials by charities such as Bloodwise that means over 80% of children now survive ALL. pic.twitter.com/ARwImgWarM
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| 8 گھنٹے |
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Bloodwise / Lisa Griffith
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As we come to the end of treatment, it's hard not to look back to the start. Hugo was just 2 years and 4 months at diagnosis, he's been on treatment more than half his life. For those wondering about his symptoms and diagnosis, this blog talks about both lifeloveandleukaemia.blogspot.com/2015/10/the-mo… pic.twitter.com/tnxDVbotzc
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| 9 گھنٹے |
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Bloodwise / Lisa Griffith
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I'm scared. Terrified that it will come back. All this time we have been fighting this thing. Now we just stop and hope it was enough, that it was all worth it. Does this fear ever go away?
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| 9 گھنٹے |
@bloodwise_uk
Bloodwise / Lisa Griffith
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You may recognise Hugo from Bloodwise's Blood Cancer Awareness campaign last September. We are so proud of our relationship with Bloodwise and grateful for the opportunity to raise awareness, do something positive and help make a difference #makebloodcancervisible #BCAM pic.twitter.com/HK9rMVVq05
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| 9 گھنٹے |
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Bloodwise / Lisa Griffith
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I'm feeling so happy for Hugo, for all that awaits him. I can't wait to watch as he grows and adjusts to life without medication and side effects. I long to see all he is capable of being as he embraces his new found freedom. I know he will continue to make me proud every day. pic.twitter.com/pzg8vqqsYi
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| 10 گھنٹے |
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Bloodwise / Lisa Griffith
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I have experienced a million different thoughts and feelings over the last few weeks. I'm so excited, but am so many other things too. Right now my tummy is fluttering and I could easily cry. Hopefully others can relate and I am not the only one to suffer end of treatment wobbles
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| 10 گھنٹے |
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Bloodwise / Lisa Griffith
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When something huge happens, be it a blood cancer diagnosis, or end of treatment, it feels like the world should stop turning, just as it has for you. But it doesn't, and it hasn't today. Everything seems normal and yet nothing about today is normal at all #MakeBloodCancerVisible
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| 11 گھنٹے |
@bloodwise_uk
Bloodwise / Lisa Griffith
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Today is a very special day. After 3 years, 2 months and 5 days of treatment, Hugo will be taking his last dose of chemo. The big moment will be around 4.30pm! I look forward to sharing my thoughts and feelings with you during the day and reflecting on our journey to this point. pic.twitter.com/xXdBFodgjy
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