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Welcome to SPOHNC
Support for People with Oral and Head and Neck Cancer (SPOHNC) is a nonprofit organization involved in the development of programs of support. As such it can have an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring and promoting physical and emotional health.
Our Mission:
SPOHNC is dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients through its resources and publications.
FIND A LOCAL CHAPTER NEAR YOU!
Support for People with Oral
and Head and Neck Cancer (SPOHNC) has over 125 Chapters throughout the
United States and continues to grow.
Learn About Support
SPOHNC IS SUPPORTING OUR TROOPS!
United States Military Medical Centers and several VA Medical Centers across the U.S. will be receiving copies of We Have Walked In Your Shoes - A Guide To Living With Oral, Head and Neck Cancer, Second Edition. These books are being provided through the support of Lilly Oncology.
We are very happy to report that Walter Reed Army Medical Center is now offering our first ever SPOHNC Chapter for active United States Military and beneficiaries. Please contact SPOHNC for meeting details.
In case you missed it, the webinar that took place on October 19th is still available to view.
Your Cancer Game Plan
For new registrants, click on the "REGISTER NOW" button in the box below and fill in the registration information.
Please indicate SPOHNC as the website which directed you to this page, in the drop down menu.
Once you have completed and submitted your registration, you can view the webinar.
If you have previously registered, click on REGISTER NOW, enter your e-mail address and log in to view the webinar.
Join SPOHNC and football Hall of Famer Jim Kelly
as we discuss motivational tips, nutritional guidance and the role of communication between caregivers,
friends and family.
SPOHNC Founder and President, Survivor Nancy Leupold, Announces Her Retirement
After 25 years of service to SPOHNC, giving of herself, her time and her knowledge and resources, Nancy has decided that the time has come for her to enjoy her leisure, her family and her beloved cat, Cinnamon. SPOHNC’s Board of Directors, staff and members are joining together to wish her well. She brought the organization to its 25th year, and will now enjoy the journey of retirement, and the next exciting chapter in her life.
Nancy has given selflessly since the end of her treatment for oral cancer, creating Support For People with Oral and Head and Neck Cancer, and its programs and services of support. Beginning with one Chapter on Long Island, and nine people in a room sharing their cancer journey, SPOHNC has now grown to more than 130 Chapter Support groups across the United States. SPOHNC’s NSVN match program, many books and print resources and monthly newsletter, "News from SPOHNC," were all created under the loving care and supervision of Nancy.
SPOHNC will highlight Nancy's 25 years in our upcoming October "News From SPOHNC" newsletter, which will include photo's, past events and highlights from her history with the organization and where she took the vision she had years ago.
If you wish to honor Nancy’s dedication to SPOHNC through a gift to the organization, please click on the link below and indicate that it is an Honorarium for Nancy. Special notes can be enclosed there as well, which will be sent along to her.
Prior To Her Retirement…
Nancy Leupold Receives Presidential Citation!
On behalf of SPOHNC, and its Board of Directors, we would like to announce that Nancy Leupold, Survivor, Founder and President of SPOHNC (Support For People With Oral And Head And Neck Cancer), received the American Head & Neck Society's Presidential Citation at the AHNS 9th International Conference on Head and Neck Cancer in Seattle, WA, on July 18th, 2016. Nancy has dedicated the last 25 years to SPOHNC. Her perseverance, commitment and insight has helped to support oral, head and neck cancer patients and their families throughout the United States. She is a visionary leader who has taken the organization from one support group when she was initially diagnosed in 1991 to 130+ across the country, today. She has also contributed her knowledge to many of the publications we offer to oral, head and neck cancer patients and their caregivers. Nancy drew strength from her own experience and has made it her mission to give hope to others.
Outreach & News
NATIONAL CHAPTERS
In 1991, when SPOHNC was founded, there were very few support groups specifically for oral and head and neck cancer patients. Today, SPOHNC is pleased to have more than 125 chapters throughout the United States.
VOLUNTEERS
The National Survivor Volunteer Network (NSVN) NSVN boasts a volunteer base of more than 200 survivor volunteers. To learn more click here...
SPOHNC’S NEWSLETTER
News From SPOHNC features articles of interest to oral and head and neck cancer patients, their families. Become a member of SPOHNC and receive the newsletter.
FEATURED NEWSLETTERS
Read about Immunotherapy
Read about it here
Learn more about Immunotherapy
Read about it here
Read about Why Are Clinical Trials So Important?
Read about it here
Learn about TORS (Transoral Robotic Surgery) for Head and Neck Cancer Patients.
Read the April 2016 issue here
RESOURCES
SPOHNC is pleased to
offer Volume 2 of our Eat Well - Stay Nourished A Recipe and Resource Guide for Coping with Eating Challenges
order now
These two books are hard cover books of recipes and information about eating challenges and nutrition, cancer journeys of survivors and suggestions and “Tips From the Pros.”
Meeting the Challenges of Oral, Head and Neck Cancer: A Guide for Survivors and Caregivers
second edition
order directly from SPOHNC
OUR STORIES
Meet some of our Volunteer Survivors, read their sharing stories and how SPOHNC helped them along the way. Check back often as additional survivor stories will be highlighted!
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Learn about SPOHNC's volunteers stories of bravery and determination. 
Valerie's Story
Marathon ManFEATURED VIDEO
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Check out SPOHNC's
Executive Director,
Mary Ann Caputo!
Here is Merck's collaboration with SPOHNC to help support head and neck cancer patients on their journey with this disease.
2016 Awareness Events
Contact SPOHNC for more information
Check out SPOHNC Palm Coast, FL at their 4th Annual Move to Music fundraiser for SPOHNC!
Great people, great music, great friends!
Look for more Awareness Event Highlights soon!
Find a Clinical Trial for Oral, Head and Neck Cancer
SPOHNC is pleased to introduce EmergingMed’s Clinical Trial Navigation Service. We want you to be aware of all of your treatment options. SPOHNC has partnered with EmergingMed to offer you a way to take action.
The CTNS is a free, unbiased service to help you find and connect with head and neck cancer clinical trials that may be an option for you. Call the Clinical Trial Navigators at 844-432-3888, email [email protected] or start your confidential search online for clinical trials that match your specific diagnosis, stage, and treatment history.
How does the service work?
The Clinical Trial Navigators will help you quickly search the entire national database for clinical trials that match your specific situation. They recommend that you search for clinical trial options before you begin your first treatment if possible, and again each time you are making a new treatment decision. This information service is designed to help you identify options—but you are NEVER obligated to enroll in a study. We simply never want to hear someone say: “I wish I had known about that earlier.” The service is free for patients and families; it is unbiased and completely confidential.
Clinical trials are research studies that test how well new medical approaches work in people with early and advanced head and neck cancers. They have a natural place in your review of treatment options as doctors strive to improve current head and neck cancer treatments and search for new and better options. Today there are various types of targeted therapies and immunotherapies in development, so there are more options to consider than ever before.
Call toll-free 844-432-3888 (Mon-Fri, 9 am -5 pm ET)
We Have Walked in Your Shoes: A Guide to Living with Oral, Head, and Neck Cancer Second Edition is now available!
We Have Walked in Your Shoes: A Guide to Living with Oral, Head and Neck Cancer is a welcomed guide for patients, survivors and their families. This resource contains the basics about the symptoms and diagnosis of head and neck cancer, types of treatment and common side effects. It also offers a section to list your healthcare team, a personal calendar and journal, diet and nutrition information, and a list of resources. It is beautifully illustrated with impressionistic paintings of the 1800's.
For bulk orders please call 1-800-377-0928 or email us at [email protected]
$14.95 includes shipping and handling
Awareness Bracelets
For a limited time only – purchase SPOHNC's newly designed oral, head and neck cancer awareness wristband... at a special discounted price of 5 for $10.00. Click here!
Purchase your SPOHNC wristband today!
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