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Orphanet Retweeted
Feb 28 is
#RareDiseaseDay & to mark this day, have a look at top#RareDisease research, blogs & a quiz here: http://buff.ly/2m1zngG pic.twitter.com/Qdnnujft4M
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Orphanet Retweeted
Today
#RareDiseaseDay - will be@UZLeuven later today presenting European Reference Networks#ERN -> meanwhile
https://youtu.be/dJwBAM6hlyQ pic.twitter.com/tgqbutr8Vl
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Orphanet Retweeted
Annie Olry
@Orphanet describes classification strategies &@hp_ontology for#raredisease@MonarchInit kickoff. Excited to have Annie here! -
Orphanet Retweeted
Aujourd’hui, journée internationale des
#maladiesrares, focus sur le guide Aides et Prestations d’@Orphanet -> http://bit.ly/2l7hb6j pic.twitter.com/hf5SMoANoD
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Today is
@rarediseaseday !#Orphanet will soon be launching its new website, here's a sneak preview#rarediseasespic.twitter.com/8za5FUcUCD
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Orphanet Retweeted
Les acteurs de la Plateforme
#Maladiesrares interpellent les candidats à la présidentielle pour un#pnmr3 ambitieuxhttp://bit.ly/2lM6gxn -
Less than 24 hours to
@rarediseaseday. Watch this space tomorrow for a sneak peek of the new#orphanet website!#rarediseases -
Orphanet Retweeted
- de 5% des
#MaladiesRares disposent d'un traitement médical pic.twitter.com/KdRBT6wMI6 https://twitter.com/Telethon_France/status/836142622544695302 …
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Orphanet Retweeted
Un 3e Plan National
#MaladiesRares est absolument nécessaire#PNMR3pic.twitter.com/oflgXBWD5w
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Orphanet Retweeted
#MaladiesRares Errance diagnostique : 1 patient sur 4 attend + de 5 ans pour connaitre le nom de sa maladiepic.twitter.com/LKOEVJOWH9
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Orphanet Retweeted
Dans qqs instants, suivez la conf de presse "#maladiesrares Trop de questions sans réponses !" en direct
http://www.facebook.com/Telethon pic.twitter.com/xd8uVpGQpa
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Orphanet Retweeted
10e Journée internationale des maladies rares : les actions mondiales et nationales
#rarediseaseday#maladiesrares -
Orphanet Retweeted
#Live in#Brussels from behind the scenes getting ready for the#EURORDISAwards2017 Watch the ceremony from 18:30: http://www.eurordis.org/live pic.twitter.com/3vUJTz973k -
All the latest from the
@irdirc conference in the latest#orphanews http://international.orphanews.org/newsletter-en/editorial/nl/id-17-february-2017.html#oa_irdirc-conference-in-paris-an-event-to-be-remembered … -
Orphanet Retweeted
Maladies rares: Trop de questions sans réponses! Conf presse 27/02 http://bit.ly/2m096jI
@Orphanet@rarediseaseday#RareDiseaseDaypic.twitter.com/1vpRMNrfGM
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Orphanet Retweeted
Thank you to all conference partners who joined us last week for
#IRDiRC2017, to help shape the rare diseases research future!pic.twitter.com/mww8xWLaCH
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Orphanet Retweeted
Ana Rath
#rdiGeneva "Rare diseases are a realistic utopia. We can leave nobody behind.@Orphanet is a tool to ensure that this is possible." -
Orphanet Retweeted
A Rath
@Orphanet 'Recommend to funders to explicitly include a country in another continent in research to make it more global"#rdiGeneva -
Orphanet followed Stéphanie Chevrel, VASCERN, NIH and 5 others
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@vascern
European Reference Network on Rare Multisystemic Vascular Diseases
#ERN#EuropeanReferenceNetwork#RareDiseases#VASCERN
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Orphanet Retweeted
The group picture from
#IRDiRC2017. Many people working and discussing on how to transform rare diseases research.pic.twitter.com/JS784jBVrK
European Commission
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