#MEAction Network

@MEActNet

An online platform empowering patients and to fight for equality for Myalgic Encephalomyelitis.

Global
ಮೇ 2014 ಸಮಯದಲ್ಲಿ ಸೇರಿದ್ದಾರೆ

@MEActNet ತಡೆಹಿಡಿಯಲಾಗಿದೆ

ನೀವು ಖಚಿತವಾಗಿಯೂ ಈ ಟ್ವೀಟ್‌ಗಳನ್ನು ನೋಡಲು ಬಯಸುವಿರಾ? ಟ್ವೀಟ್‌ಗಳನ್ನು ನೋಡುವುದು @MEActNet ಅವರನ್ನು ತಡೆತೆರವುಗೊಳಿಸುವುದಿಲ್ಲ.

  1. ಪಿನ್ ಮಾಡಿದ ಟ್ವೀಟ್
    ಜನ 25
  2. 2 ಗಂಟೆಗಳ ಹಿಂದೆ

    Ampligen is in clinical trials as the first possible FDA-approved medicine to help people with ME. The...

  3. 18 ಗಂಟೆಗಳ ಹಿಂದೆ

    Great talk today at Georgia General Assembly on and great meeting afterwords with officials on how to increase ME/CFS education!

  4. 17 ಗಂಟೆಗಳ ಹಿಂದೆ

    If you're feeling alone & unsupported, remember the times we came together last year to fight for change.

  5. 20 ಗಂಟೆಗಳ ಹಿಂದೆ

    In her TED Talk discusses being diagnosed with ME & campaigning to make sure other patients don't have the same experience she did.

  6. 23 ಗಂಟೆಗಳ ಹಿಂದೆ

    Family testifies re: the CDC's harmful recommendations at recent CFSAC hearing, demanding reversal of glacial pace:

  7. 24 ಗಂಟೆಗಳ ಹಿಂದೆ

    , can you help us get the recent Bristol Cable article (w/ its perspective on ) "out there"?

  8. ಜನ 31

    Look, there I am looking stately with my blue earplugs on

  9. ಜನ 31

    Indrukwekkende Tedtalk van Jennifer Brea

  10. ಜನ 31

    I've been so poorly of late & my lovely friend sent me this fab brooch to cheer me up 😆

  11. ಜನ 31

    Have you watched founder's yet? Join the 440,000+ people who have been moved by her story here:

  12. ಜನ 31

    Welcoem, and other new followers! We work to support and equity in research & awareness; we're glad you're here with us.

  13. ಜನ 31
  14. ಜನ 31
  15. ಜನ 31

    ME patient Jamison Hill explains the flaws and history of the psychosomatic theory, and how it can be detrimental...

  16. ಜನ 31

    "When I do my blog now, I feel the post exertional effects for a week afterwards."

  17. ಜನ 30

    Awareness, identification, acknowledgement, education, prevention, & MORE RESEARCH & TREATMENT OPTIONS are crucial!

  18. ಜನ 30

    "Murray has tried to bring the true burden of illness out of the fog of incomplete, inaccurate & confusing stats."

  19. ಜನ 30

    An estimated 45,000 people with disabilities attended the Women's March in Washington, making it the largest...

  20. ಜನ 30

    Funding finally announced for research centers & a data mgmt. center for is an infuriatingly small amount:

  21. ಜನ 30

    Read Lily Chu's CFSAC testimony: "...communities deserve an equal place at the table" (Thank you, Lily!)

ಲೋಡಿಂಗ್ ಸಮಯ ಸ್ವಲ್ಪ ತೆಗೆದುಕೊಳ್ಳುತ್ತಿರುವಂತೆನಿಸುತ್ತದೆ.

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