The ALS AssociationKonto zweryfikowane

Whether it’s #StemCells, gene therapy, or RNA, we’ve made major progress in innovative #ALS research in 2017. Find out more about the progress we made this year: http://bit.ly/2jYkyZO  #MND #alssymppic.twitter.com/79ygyVkirW

Advocates built support for the ALS Disability Insurance Access Act in Congress this year, a key priority to improve access to needed services for people living with #ALS. #MND #alssymppic.twitter.com/XrLMKasQEs

We wrapped up the ALS IMPACT Survey in 2017! With the help of the almost 1,000 responses from our #ALS community, we’ll be better able to develop strategies to empower both caregivers and people living with ALS! #MND #alssymppic.twitter.com/EHKyyQMFeN

The ALS Association and our advocates joined with other leading organizations to protect the rights of people living with #ALS who are on Medicaid, ensuring access to care. #MND #alssymppic.twitter.com/sYNc1U1TEo

IMPACT ALS survey results shows that burden of #ALS is high – another step closer to establishing the burdens of daily life & identifying unmet medical needs of our community. We are excited to continue these critical studies! More results coming soon. #alssymp @Cytokineticspic.twitter.com/M2YLhjrvI9

Part of ALS PREFER – IMPACT ALS survey - was sent to people w #ALS & caregivers to gather data about disease burden, functional outcomes and treatment views. Thrilled to see a great response – 1,534 participants. Thank you to all that took part! #alssymp @Cytokineticspic.twitter.com/14eHZGoGdC

It is important for ppl w #ALS to give input & integrate into drug development process. Together w @Cytokinetics & collaborators, we are developing ALS PREFER – a research driven platform building robust ALS patient preference studies. Thank u Lucie for presenting today! #alssymppic.twitter.com/74yjDV0iIa

Dr. Bjorn Oskarsson @MayoClinic FL, Director of one of our Certified #ALS Clinics, is presenting an analysis of studies treating muscle cramps for those living with #ALS. So helpful to be as informed as possible. #alssymppic.twitter.com/IQR9ZQ1YEu

After being newly diagnosed w #ALS, many people wonder if they can still exercise. A brand new study by funded Dr. Maragakis @HopkinsMedicine is showing that you still can exercise safely and tolerably! #alssymp. Check out our blog for more: http://bit.ly/2ATYxX8 pic.twitter.com/urC6TmPXbD

In 2004 we invested $1.5 million in #antisense therapy research. Fast forward to 2017, and we’ve already seen one @US_FDA approved drug & one more #ALS treatment drugs in clinical trials. #ALSresearch #MND #alssymppic.twitter.com/5ofzBXwn8S

Close collaborator, Dr. Kevin Horton @CDCgov & National #ALS Registry presents findings about how close ppl living with ALS are to clinics, 1 key to ensuring that all members of the ALS community have access to the care & support they need. Thank u for your hard work! #alssymppic.twitter.com/nAJfelCboY

On stage now at #alssymp Sheila Essey-award winner Adriano Chio presents studies #ALS to explore number of events that are necessary to cause neurodegeneration & how genetic mutations impact this number.pic.twitter.com/dqtYfskqCH

Dr. Michael Benatar @univmiami, one of our funded researchers, discusses insight into the longitudinal #ALS biomarker study of blood and CSF - called NfL- shows possible first biochemical biomarker of pre-symptomatic disease. Very exciting! #alssymppic.twitter.com/27JlTi8p2Y