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The ALS Association
@
alsassociation
Washington, D.C.
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The ALS Association National Office / Fighting Lou Gehrig's Disease
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21,134
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723
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29,736
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The ALS Association
@alsassociation
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The ALS Association
@alsassociation
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9 ಗಂ. |
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Congratulations to Bernard Muller from Project MinE @_Makeityours - recipient of the #ALS Patient Impact Award at #alssymp! So inspiring and well deserved!
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The ALS Association
@alsassociation
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In the last year, more than 48,000 people viewed, downloaded, or ordered our new educational materials, including the Living with ALS and Families and ALS resource guides and medical information packets. bit.ly/2ktp7iI #ALS #MND #alssymp
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The ALS Association
@alsassociation
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Whether it’s #StemCells, gene therapy, or RNA, we’ve made major progress in innovative #ALS research in 2017. Find out more about the progress we made this year: bit.ly/2jYkyZO #MND #alssymp pic.twitter.com/79ygyVkirW
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The ALS Association
@alsassociation
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A former Milton Safenowitz postdoctoral fellow Marka van Blitterswijk @MayoClinic is looking at people w C9ORF72 mutation to identify new #ALS disease pathways which translate into new therapeutic targets. Great work! #alssymp
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The ALS Association
@alsassociation
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Advocates built support for the ALS Disability Insurance Access Act in Congress this year, a key priority to improve access to needed services for people living with #ALS. #MND #alssymp pic.twitter.com/XrLMKasQEs
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The ALS Association
@alsassociation
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Great to hear the fast progress out of @AnswerALS and its new partnership with Project MinE @Makeityours. Collaborations are key to finding a cure for #ALS! #alssymp Learn more: bit.ly/2rejCmx
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The ALS Association
@alsassociation
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We wrapped up the ALS IMPACT Survey in 2017! With the help of the almost 1,000 responses from our #ALS community, we’ll be better able to develop strategies to empower both caregivers and people living with ALS! #MND #alssymp pic.twitter.com/EHKyyQMFeN
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The ALS Association
@alsassociation
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The ALS Association and our advocates joined with other leading organizations to protect the rights of people living with #ALS who are on Medicaid, ensuring access to care. #MND #alssymp pic.twitter.com/sYNc1U1TEo
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The ALS Association
@alsassociation
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Throughout 2017, we collaborated with 130+ clinical partners, incorporating American Academy of Neurology best practices. bit.ly/2ktp7iI #ALS #MND #alssymp
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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IMPACT ALS survey results shows that burden of #ALS is high – another step closer to establishing the burdens of daily life & identifying unmet medical needs of our community. We are excited to continue these critical studies! More results coming soon. #alssymp @Cytokinetics pic.twitter.com/M2YLhjrvI9
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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Part of ALS PREFER – IMPACT ALS survey - was sent to people w #ALS & caregivers to gather data about disease burden, functional outcomes and treatment views. Thrilled to see a great response – 1,534 participants. Thank you to all that took part! #alssymp @Cytokinetics pic.twitter.com/14eHZGoGdC
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The ALS Association
@alsassociation
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It is important for ppl w #ALS to give input & integrate into drug development process. Together w @Cytokinetics & collaborators, we are developing ALS PREFER – a research driven platform building robust ALS patient preference studies. Thank u Lucie for presenting today! #alssymp pic.twitter.com/74yjDV0iIa
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The ALS Association
@alsassociation
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Dr. Bjorn Oskarsson @MayoClinic FL, Director of one of our Certified #ALS Clinics, is presenting an analysis of studies treating muscle cramps for those living with #ALS. So helpful to be as informed as possible. #alssymp pic.twitter.com/IQR9ZQ1YEu
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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After being newly diagnosed w #ALS, many people wonder if they can still exercise. A brand new study by funded Dr. Maragakis @HopkinsMedicine is showing that you still can exercise safely and tolerably! #alssymp. Check out our blog for more: bit.ly/2ATYxX8 pic.twitter.com/urC6TmPXbD
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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In 2004 we invested $1.5 million in #antisense therapy research. Fast forward to 2017, and we’ve already seen one @US_FDA approved drug & one more #ALS treatment drugs in clinical trials. #ALSresearch #MND #alssymp pic.twitter.com/5ofzBXwn8S
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The ALS Association
@alsassociation
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Close collaborator, Dr. Kevin Horton @CDCgov & National #ALS Registry presents findings about how close ppl living with ALS are to clinics, 1 key to ensuring that all members of the ALS community have access to the care & support they need. Thank u for your hard work! #alssymp pic.twitter.com/nAJfelCboY
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The ALS Association
@alsassociation
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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On stage now at #alssymp Sheila Essey-award winner Adriano Chio presents studies #ALS to explore number of events that are necessary to cause neurodegeneration & how genetic mutations impact this number. pic.twitter.com/dqtYfskqCH
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The ALS Association
@alsassociation
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ಡಿಸೆಂ 9 |
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Dr. Michael Benatar @univmiami, one of our funded researchers, discusses insight into the longitudinal #ALS biomarker study of blood and CSF - called NfL- shows possible first biochemical biomarker of pre-symptomatic disease. Very exciting! #alssymp pic.twitter.com/27JlTi8p2Y
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