NORD

@RareDiseases

National Organization for Rare Disorders () is the voice of the community. Official U.S. sponsor of (2/28/2018) .

USA
ಅಕ್ಟೋಬರ್ 2009 ಸಮಯದಲ್ಲಿ ಸೇರಿದ್ದಾರೆ

ಟ್ವೀಟ್‌ಗಳು

ನೀವು @RareDiseases ಅವರನ್ನು ತಡೆಹಿಡಿದಿರುವಿರಿ

ಈ ಟ್ವೀಟ್‌ಗಳನ್ನು ವೀಕ್ಷಿಸಲು ನೀವು ಖಚಿತವಾಗಿ ಬಯಸುವಿರಾ? ಟ್ವೀಟ್ ವೀಕ್ಷಣೆಯು @RareDiseases ಅವರ ತಡೆತೆರವುಗೊಳಿಸುವುದಿಲ್ಲ

  1. 2 ಗಂಟೆಗಳ ಹಿಂದೆ

    Learn more about our 2017 Keynote Speakers & this year's event here:

  2. 2 ಗಂಟೆಗಳ ಹಿಂದೆ

    2017 Keynote Speakers Announced : Commissioner, Dr. Scott Gottlieb & Founder & CEO of , Mike Porath

  3. 15 ಗಂಟೆಗಳ ಹಿಂದೆ

    D.C. office had a great visit today w/ patient & leader from Julie Scott!

  4. ಜುಲೈ 19

    2017 Patient & Family Conference to be held 10/13-14 in Tennessee. Learn more:

  5. ಜುಲೈ 18

    Congratulations to community for recent advancement in research. Learn more:

  6. ಜುಲೈ 18

    Interested in getting involved in ur home state by advocating & raising awareness 4 ? Sign up to join Network!

  7. ಜುಲೈ 18

    Get Inspired. Help Others. Share Your Story. for visit today!

  8. ಜುಲೈ 18

    Hear it first! Sign up for email communications from NORD to hear the latest on & news:

  9. ಜುಲೈ 17

    Visit Days of Action Campaign homepage 4 quicky & easy ways 2 help advocate 4 & oppose :

  10. ಜುಲೈ 17

    Make your phone call today. Click here for easy calling tool & script to :

  11. ಜುಲೈ 17

    Making a phone call to your Senators' office helps to stress urgency in voting no on the , leg. that would be harmful to

  12. ಜುಲೈ 17

    Frequently asked questions & much needed resources for the community are housed here:

  13. ಜುಲೈ 17

    Check out these stories from advocates like you. Send your video message in 2 help :

  14. ಜುಲೈ 17

    Sign up to receive email communications from abt upcoming opportunities & news:

  15. ಜುಲೈ 17
  16. ಜುಲೈ 17

    Get your Senators twitter handle to send a tweet to them here: VOTE NO

  17. ಜುಲೈ 17

    Fill in blanks to send tweet: () [ENTER STATE] patients say vote no . Will you ?

  18. ಜುಲೈ 17

    patients say vote NO on the . Call Senators to tell them to :

  19. ಜುಲೈ 16

    RETWEET. The community MUST ACT NOW. Download resources here to :

  20. ಜುಲೈ 16

    There are several provisions within the that will be harmful to patients. Vote NO.

ಲೋಡಿಂಗ್ ಸಮಯ ಸ್ವಲ್ಪ ತೆಗೆದುಕೊಳ್ಳುತ್ತಿರುವಂತೆನಿಸುತ್ತದೆ.

Twitter ಸಾಮರ್ಥ್ಯ ಮೀರಿರಬಹುದು ಅಥವಾ ಕ್ಷಣಿಕವಾದ ತೊಂದರೆಯನ್ನು ಅನುಭವಿಸುತ್ತಿರಬಹುದು. ಮತ್ತೆ ಪ್ರಯತ್ನಿಸಿ ಅಥವಾ ಹೆಚ್ಚಿನ ಮಾಹಿತಿಗೆ Twitter ಸ್ಥಿತಿಗೆ ಭೇಟಿ ನೀಡಿ.

    ಇದನ್ನೂ ಸಹ ನೀವು ಇಷ್ಟಪಡಬಹುದು

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